Wednesday, August 31, 2011

busy...

Well...I am officially another year older. I would have to say that 32 did age me a few more years than it should have...and I am now praying that 33 will be much kinder to me. It started off great! Although I didn't have anyone sing happy birthday to me, or get to blow out any candles on a cake, it was a wonderful day. I actually got to go out to dinner with friends two nights in a row, and had a great time. Then we had friends and Andrew's parents over for cake and ice cream. What a fantastic day. I got a gazzilion messages on facebook wishing me happy birthday and bunch of emails. That sure made my day.

Today I am feeling really good, so I am going to try and work hard at getting things done around the house: laundry, cleaning, grocery shopping and some cooking. I'm pretty sure I will sleep well tonight!

Tomorrow I am heading back to Jefferson City for work. I feel like I am going home, when actually I am home. I miss Jeff City so much. I miss my friends, my neighbors, my work...just about everything! I wish I were heading back with Andrew and Charly and staying longer than 2 days, so we could pack our days full of fun with our friends, but I don't think I will have a problem doing that myself! I am making sure to hit some hot spots and definitely bringing my gift certificate to the bakery to bring back some goodies for Andrew, Charly, and whoever else is around at my house! It will feel good to get out and work a little and see my staff again. I miss them.

Then when I head back home Friday I am in for a Labor day weekend packed full of stuff to do and fun. We are starting out our weekend at the City Market to soak in some good ol' KC and let Charly partake in the children's fun (the train)...and then we have a 2:00 pm birthday party where we are celebrating the magnificent births of the following people: my sister-in-law Amber, her mom Patti, my nephew Jacob, my sister Amanda, my Grandma Wanda (if she can fly in from Seattle) and of course...the most miraculous birth of them all...MINE!

Then I get to celebrate again on Labor day my mother-in-law Meg and my birthday again. We share a birthday! How fun!!! So I'm sure that somewhere in there I will get the birthday song sung to me and blow out some candles to make a wish! Because I've been thinking of my wish for awhile now....:)

So if I am not on for awhile...it's because I'm busy! Enjoy the rest of your week and the holiday weekend...I'll be back soon with lots of pictures! :)

Monday, August 29, 2011

tomorrow will be even better...

It only took about 5 tomorrow's, but I am now on the mend, and things are better! I had a very rough 5 days.

I connected on Tuesday and basically laid around the entire day. (I have found if I do this, I end up having an easier time dealing with the chemo...maybe it is because I do not wear myself out...I don't know)

Wednesday instead of laying on the couch I laid in bed all day. I wasn't feeling well. It is hard to explain... I didn't throw up, but I was nauseous most of the day, dizzy and extremely tired. Like so tired that just getting up to brush your teeth is hard work. It makes it almost impossible to accomplish anything, and I'm really accomplishing alot if I can shower and get dressed! I really feel sorry for my husband these days. I am thankful that I have my mom to help me out as well. She comes over in the mornings to get Charly dressed and ready for daycare and takes her. I ride along.

Thursday morning at 4 am I woke up to chemo dripping down my chest. I immediately freaked. I don't' know what is in this chemo stuff, but I do know that when the nurses at St. Luke's handle it they are fully protected with robes, gloves, masks, etc. I went down to the kitchen and got my spill kit that they give you (and you never think you'll use!). I took off the dressing over my needle and sure enough the dang needle was sticking out. I pushed it in and grabbed a saline flush to see if it was in, and thank GOD I had blood return in the line, indicating it was in place. My upper right arm had crust all over it from where the chemo had dried and around the port was crusty from chemo. I cleaned it up, put on another dressing over the needle and went back to bed. I couldn't sleep! In the morning (about 30 minutes later) I got out of bed to google what chemo does to your skin...it burns. I have found that out now. I have an area over my port that is burned, but overall it wasn't too bad. Just an experience I don't want to go through again! I have to admit, that at 4 am when this was taking place, my initial reaction was to pull the needle and dispose of the rest of the chemo. But...I fight on! This stuff is going to do it's job!

Friday I went to the local hospital to get a shot of neulasta. It was at this appointment that I realized when the nurse asked me what medications I was on, that I realized I forgot to take my steroid this time. Not sure if it would have given me anymore energy, but it probably would have helped a little with dealing with the last 5 days. The shot hurt so bad I thought I would cry! I mean...I've been through quite a bit of painful things since January, and this was up there...it killed. Lucky me I get to get this shot 5 more times! So far it really hasn't affected my bones like the neupogen shots did. Saturday my arms and ribs were sore, but that has subsided and now I feel pretty good. Yesterday I did notice I was getting a mouth sore. This is an indication my white blood counts are low. I hope the neulasta kicks in and the bone marrow starts working overtime! Saturday and Sunday I was getting better, still very weak, still very tired, still felt very lazy, but didn't want to do much. Plus the diarrhea had kicked in. Yes...don't think I get away with that side effect of chemo. Here it is Monday...my last day of being 32! Tomorrow is my birthday and I am looking forward to spending it with the people I love and enjoying the day. Happy Birthday to me. :)

I smiled today because the last 5 days are over!

I smiled today because we have had friends come over to the house every night to hang out and I have enjoyed the company!

I smiled today because the house is getting done...slowly, but it is getting done!

I smiled today because I am so blessed! I have everything I could ever want!

I smiled today because we have replaced our vehicle with a different one! FINALLY!!!

Today is going to be a great day...but tomorrow will be even better! It's my birthday!

Wednesday, August 24, 2011

I'm passing on the cold stuff...

The neuropathy has set in along with the fatigue. I did have a nice 2 week break, but now I'm gearing up for a week of h e double hockey sticks! I already tried this morning to get the milk out to get Charly her morning drink and it sent a shock from my finger tip up my arm...yikes! I haven't been able to touch or eat anything cool, and that really drives me crazy! Today I am planning on laying around on the couch all day and just relax. I went to bed early last night because I wasn't feeling well and was hoping I could just sleep through it and keep the food in my stomach where it needed to stay (it did!). One more night of sleeping with this stupid pump and I will be set free! I can't wait.

I am going in Friday for the first of my neulasta shots. They have arranged for me to get them done at the local hospital here instead of driving into the city. The convenience will be nice...the shot will stink! Let's just hope this works.

I'm going to try to nap a little...more later.

Monday, August 22, 2011

hmmmmm....

I have to say...things are going well. Other than being exhausted all the time and trying to get stuff accomplished at our new house, I am doing well. I miss my old home, I miss my neighbors, my friends, and my work. I want to go back to my old life...just for a day! Just to tell myself that things weren't bad then...oh, the lessons I have learned.

I will be going to get chemo tomorrow. (fingers crossed) I dread it. I hate it. I seriously want to crawl into a hole and go into a deep depression because going to chemo is the one thing that I can do without. But...I fight on. I fight for me, I fight for my husband, I fight for my baby and my family and friends...I fight for other cancer patients. I will win this.

I'm hoping the next week I feel good. It will be my 33rd birthday. 33! I can't believe it. I hope to be able to celebrate with my husband and daughter and enjoy ourselves. After that, I will be heading to Jefferson City for 3 days to work. I look forward to that and seeing everyone. I'm sure my 3 days will be full of stuff to do and people to visit with.

Over this past weekend we had a visit from a dear friend and her family from Jefferson City. It was good to get out and have fun and good to visit with them. I can't wait till they come back and look forward to our house being put together so it is more like a home!

Things keep on going and I keep on fighting...Not looking forward to tomorrow, but hoping it is a good day!

Tuesday, August 16, 2011

It is a good thing...

It is a good thing that tomorrow will be better than today! I anticipated today being pretty rough for me, but I would have never imagined how it really went! Today was Charly's first day of daycare...my first time getting chemo at the new place...and both of those things weren't enough...we had to start our day off totaling our car! YIKES! The good thing was that nobody was hurt! Broadsiding someone who pulls out in front of you at 40+miles an hour is not fun! Charly's neck was burned from the car seat, I have a large bruise on my knee and forearm, and my mom's foot is killing her! Yes...we have weird injuries...but overall we are all ok! I had to call the babysitter and tell her we would be late...then I had to call the cancer center and let them know as well...thing is...it turned out I didn't even get chemo today at all...so it was all for nothing, or maybe could have been avoided if we had just stayed in bed today!




That is right...no chemo today! Today was suppose to be my #7 out of 12 treatments. My blood work came back with my absolute neutrophil count being way too low for chemo. So...they have put it off a week in hopes that my bone marrow will start to work a little harder and raise my neutrophils! My new oncologist that I absolutely love, wants to start me on neulasta shots...NOT FUN! I took the neupogen shots my first go around with chemo, and they hurt so bad. The actual shot isn't what is horrible...it is the severe bone pain you get for about 3-4 days that just about cripples you! I am not looking forward to that! The neulasta is similar to the neupogen, but a little stronger...that scares me!

The plus side of having to delay my chemo, is that I won't have to have my #8 treatment on my birthday! The down side is that it just drags it out a little longer, and throws my schedule off completely! But...just like everything else in my life...I just have to go with it!

It will give me the week to get some things done around the house (and Lord knows there is a lot to do!)...get some painting started...put some stuff away...and maybe take a nap or two in between trying to get some work done from home for my real job!

So...overall today wasn't that great, but I still smiled because:

~I paid 30.00 yesterday for a train set for Charly, and it was the best 30.00 I have EVER spent! She played with it for hours!


~I don't know...maybe I get a new car???

~We have a friend coming over for dinner!

~I have another week of feeling good! :)

Sunday, August 14, 2011

C.R.A.Z.Y.

PHEW....things have been C.R.A.Z.Y.!!!! I can't seem to find the time to get on the computer anymore to blog. I also have had some writers block...I just don't want to write...and more than that, I don't want to write about how I'm feeling or cancer. I hate to even type out the word!

I have 2 days till I start my next round of chemo...I absolutely dread it. Although this time around is much much much better on me physically, I find that it is a little tougher mentally. I am exhausted most of the time and when I start to feel better and almost back to normal, it is time for another round and I absolutely DREAD it! I hate to be hooked up to that stupid pump. I really really REALLY want to be done with chemo!

I have been actually feeling really well! I hate that I am constantly asked by my family and friends how I am feeling, or how am I doing...this absolutely drives me crazy! Although I know that they really just care and are concerned with how I am doing, it is a constant reminder that things just aren't right...that I am sick! I look alright...sometimes I feel alright...and I do a good job of hiding it when I am not. If you ask me how I am doing...my answer will always be that I am doing well...even when I am not. Don't get me wrong...I love that I am cared about, that people genuinely want to know how I am feeling and doing...I'm just pretty sick and tired of this cancer crap all together. I tend to want to put it back in the corner of my mind tucked away and only think about it when I have to! I. Hate. Cancer.

Anyway...

The move has gone pretty well! I can't complain! We were blessed to have so many people help us out...dinner brought over, help with packing, help with cleaning, help with unloading, help with Charly...it is truly a blessing that we have such wonderful friends and family!

I'm hoping to get some stuff put away around the house this week. Charly will start going on Monday to a new babysitter here, and with her out of the house I hope we can get stuff put away, walls painted, and the house to a livable state! I do love my new house, and more than that I absolutely am loving the fact that we are so close to our family! Charly and I walked down the street yesterday morning to my brothers house to visit with them! My brother lives on the same street...just about 7 houses away! I'm pretty sure due to this move and the fact that we are so close to my brother and his family, we have now acquired 3 more kids...and I love it!

I'm going to try to enjoy the next 2 days and will probably be posting more this week when I am laid up with a stupid pump and probably not feeling well! Enjoy your Sunday!

~I have already smiled today (and it is only 5:20 am)...because it is my 9 year anniversary! I have the best husband ever!

Tuesday, August 9, 2011

Round 2 and some news...

Round 2 of chemo is complete...I only have 6 more to go! I am amazed that a month has already flown by...I am amazed that it is already August! I apologize for not being on here lately...things have been crazy, and I will fill you in! Time is going by so fast!

Last Tuesday (last blog post), was a rough day for me! It was very unusual for me to feel so ill on my first day of chemo, but I did. I spent the evening throwing up, while everyone else finished up last minute packing....

Last Wednesday, I woke up to a 101 degree temperature. I was SICK! I got up, got as dressed as I could (just managing to sit up out of bed was a chore)...and I then headed to my friends house to spend the day on her couch. And I did...the ENTIRE day! Half way through the day my fever broke, and I did start to feel better. While I laid on the couch my house was being loaded into a U-Haul trailer by Andrew, my mom, brother and some really great friends. I mean, who is willing to take the day off work and load a truck in 100 degree heat? We have some amazing friends!Needless to say, they did a great job packing, and I had a friend come clean the house, and the house looked great. I was sad to leave it, but ready for our new adventure! We had a great evening at our friends house having dinner and hanging out! While we were still in Jefferson City, Charly had left for Leavenworth with my mom, and my brother was driving the U-haul packed full of my house!

Last Thursday was a big day for us...we were to close on our house in Jefferson City at 9 am (which took 2 1/2 hours), and then pack up both of our vehicles and drive 3 1/2 hours to sign for our new house in Leavenworth. Traditionally, Thursday-Saturday of Chemo our my worst days, but I made it through the day with a little help from some Zofran and lots of help from answered prayers! We have signed on both houses and that evening everyone came to help us unload and celebrate with pizza!

Friday I spent most of the day laying around and a little of the day helping unpack boxes. I never could have imagined how much STUFF is in a house! Andrew left early in the evening after spending the day unpacking boxes, to head back to Jefferson City for his weekend Guard Drill. I cuddled up in bed with my 2 year old and got a great nights sleep!

Saturday was the most amazing day ever, and I was feeling really good!!!!! I have pictures to post, but right now I have temporarily lost track of where my camera is! My family and I packed up our vehicle to drive 4+ hours to the benefit my friends had put together for me! I did not know what to expect...and what we encountered far exceeded anything I could have imagined! My friends had come together to WORK their tails off waiting tables, collecting money, washing dishes, cooking, auctioning off items, you name it...they were busting their rumps for ME! The benefit was a HUGE success!!! Just from the check I recieved for the donations from the meals 314 people ordered dinner meals that contributed to my benefit! The auction was unbelievable...people were paying crazy money for baked goods, one of which was my father-in-law, who decided to pay 350.00 for a tray of cinnamon rolls! It truly was a great time! The envelope of money that I got added up to be OVER 6,000.00!!!!!! I could never thank everyone enough! The money will definitely help with paying off the rest of my medical bills, and my upcoming trip to Houston! I LOVE YOU GUYS! I have said it before and I will say it again...I have the best friends ever! EVER!!!!

Sunday could not top Saturday...(I mean, what could???)...I did spend the day relaxing as much as I could...I was WORN OUT! Plus by the middle of the day it was catching up to me and I was not feeling well. It was a good thing I was at my mom's house, close to a bed and more importantly, close to a bathroom! Overall, I would have to say, this chemo round was not too bad. If they are all like this, I will make it through with flying colors! It definitely helps to know I have such an amazing support system! You guys rock!

So...things are a little crazy now for me! I can't find the laundry soap...I didn't know where my silverware was until last night when I found it in a box of Charly's feather boas....yep...moving is horrible! I can't wait to get my house together, get our lives to normal...to be able to RELAX!!! I am thankful for all the help I have been given! Really this cancer has taught me how important having friends and family close are. How much you need people, and how much people need you! I can't wait to be able to pay forward!!!

We are heading back to Jefferson City today after my first oncology appointment in KC! I will blog and let you know how that goes! Again...sorry about the delay...things have been crazy!

Tuesday, August 2, 2011

sicky...

As I write this I am being cared for by my mom and daughter. I have already started feeling bad and throwing up. I dread being nauseous and being sick, but I know that it won't last forever! It just stinks to start feeling so good and then BAM...you are sick again! It is worth it though, if it kills this cancer and I am set free!!!





I get to lay on my couch and look at my house in boxes...that alone makes me cry, and then not feeling well on top of that just makes me cry more! So...I got a good cry in and now I'm back to kicking some arse! :)




For lunch I really didn't want to have the "bags of chemo" they give me, so I was lucky enough to have a lunch date in the cancer center! Andrew, James and my mom joined me for lunch! It was good. I enjoy the company! I'm thrilled it is my last time at the cancer center...on to a new one next week! I look forward to a change of scenery! It may help the last 6 treatments to fly by!!!








I smiled today because my mom and brother are here...I love them!

I smiled today because the house is all packed up and ready to go!

I smiled today because I have the best friends, family, and co-workers! Life is amazing...

Today was a good day, tomorrow will be even better!

3 a.m.

I've been awake since 3 a.m.! I can't sleep! I have been feeling so good the last few days, and I am absolutely dreading the fact that I have to do another round of chemo in about 5 hours! I.HATE.CHEMO...and more than that...I.HATE.CANCER!

On a good note, I had fun at Pizza Hut last night for my benefit. I'm so blessed to have such great friends who came to support me and who put it all together. I got home around 5:45 and about 10 minutes after I got home I got a message that the Pizza Hut was so busy they were having a hard time keeping up! How fun! I will keep everyone posted on how the benefit turned out!

I am going to try to go back to sleep...I will update more soon!